we need YOU!! Sebaceous Adenitis study - Havanese Forum : Havanese Forums
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post #1 of 82 (permalink) Old 07-22-2009, 11:16 AM Thread Starter
Janet Hicks
 
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we need YOU!! Sebaceous Adenitis study

Cross posted with permission:
As you may know, funding for the research project to identify the mode of inheritance and gene or genes associated with Sebaceous Adenitis in the Havanese breed has been approved! We have started to enroll dogs into the study and we need your help. We are looking for dogs of any age with suspected or diagnosed sebaceous adenitis and dogs that are 7 yrs of age or older without sebaceous adenitis.

If you volunteer your dog, you will need to make a vet visit, have 5 ml of blood drawn and have a skin punch biopsy taken. The funding for the study will cover the costs of the vet visit, blood sample and biopsy. In addition, the participating clients will receive $12 for the blood sample and $40 for the skin punch biopsy for each dog enrolled in the study as compensation for your dog's participation.

To apply for enrollment, please complete the attached information sheet and return it to me. I will build a pedigree for your volunteered dog, do pedigree research as it relates to SA to see how closely related your dog is to known SA affected dogs (we need dogs that are closely related and some that are not closely related to SA affected dogs) and I will submit the documentation to Dr Koch and her research team at the U of MN. They will evaluate the information, select the dogs that they want to include in the project and will contact the owners for participation and next steps. Although I will know the dogs that are volunteered for the project, I will not know the dogs that were actually selected to participate. From this point on, it will be totally confidential. Only the project leads at the U of MN will know the identity of the dogs participating in the project.

If you have a dog or dogs that fit the criteria for the study and you are willing to allow them to participate, please complete the attached information form and return it to me. If your dog is symptomatic for SA, PLEASE INDICATE THIS IN THE NOTES SECTION OF THE FORM. We are in desperate need of additional SA affected dogs.(regardless of age) If you have or know of a dog that is or may be SA affected, I encourage you to volunteer this dog for the study. If you have any questions, please feel free to contact me. You are welcome to call me a 763-213-1498 if you prefer a conversation vs email. Thank you all for your support of this effort and for your willingness to participate. I hope I have the opportunity to work with you.

. . . . .permission to cross-post

MaryEllen Vickery


This study is so important to the future of our breed! PLEASE consider participating if you have a dog that meets the criteria.


Any questions, just let me know or contact MaryEllen at dejas1@msn.com

You can find more information on SA (sorry it's not been updated yet) at: http://janizonahavanese.com/SA.html
I will be putting the link for the submission form on the website as I'm unable to attach it here. You can also write me direct for it until I get it on my site.

Thank you!

Janet Hicks
Janizona Havanese
www.janizonahavanese.com


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post #2 of 82 (permalink) Old 07-22-2009, 11:39 AM
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What a wonderful study for the betterment of our breed! Tucker doesn't have SA, but we'd be applying if he did. (And, he's only 2-1/2.) I can't help but think that the more that is known about any area of genetics in the havanese, the better it will flow over into other areas to be beneficial, too.

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post #3 of 82 (permalink) Old 07-23-2009, 03:25 PM Thread Starter
Janet Hicks
 
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Thanks Sheri.

Unfortunately there doesn't seem to be anyone reading or replying to this post. I don't know how to get this message out the the Havanese owners. WE NEED HELP from pet owners of Havs with AND without SA for this study!!

Janet Hicks
Janizona Havanese
www.janizonahavanese.com


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post #4 of 82 (permalink) Old 07-23-2009, 03:45 PM
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Not everyone reads the Forum every day, (unlike some rather addicted folks like myself. ) I'd keep bumping this up every day or so. It seems like there was at least one person I've seen on here whose dog may have had SA, but they don't post often. And, there aren't many whose dogs are 7 years or older, but even those may have missed the request for samples from that age bracket NOT diagnosed with SA.

I hope there are good responses from somewhere...could there be something printed up and handed out at the big Havanese National coming up?

Sheri, Tucker's Mom
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post #5 of 82 (permalink) Old 07-23-2009, 03:52 PM Thread Starter
Janet Hicks
 
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what does "bumping it up every day" mean? Thank you, I do plan to have a hand out at the National and it will be in the Hotline also. We are posting this everywhere we can!

Janet Hicks
Janizona Havanese
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post #6 of 82 (permalink) Old 07-23-2009, 03:59 PM
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Is it painful?

Our Daisy continues to itch despite what we do, it gets worse each year now that she is five. I have shaved her down to the skin to see if she has fleas, and she does not. She has some dry skin close to her rear, probably from constant scratching.

Her eyes do run a lot, but I don't notice a waxy residue in the ear.

Allergy meds aren't working...she eats a raw diet. Could she have it? She has always had a thin coat, almost as if she has no undercoat.

I didn't just get havanese, I got a lifestyle!
Linda
Loving Havanese since 2003
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post #7 of 82 (permalink) Old 07-23-2009, 05:14 PM
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Linda:

Now would be a good time to have her checked-I know ME would really appreciate anyone who is willing to take part in the study.

Pat (humom to)
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post #8 of 82 (permalink) Old 07-23-2009, 05:19 PM
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Janet, "bumping it up" means simply adding another Quick Reply to the thread, and often just by inserting one of the Smilies like . This boosts it up to the top of the posts again, until it eventually works it's way down the list again. Then, after a day or two you can bump it up again.

Linda, I'd sure be checking it out! Poor Daisy! And, how hard for you to have to see her itching all the time. That is SO tiring and stressful for both of you.

Sheri, Tucker's Mom
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post #9 of 82 (permalink) Old 07-23-2009, 05:44 PM
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I don't recall any forum dogs having it but you may want to pm the person you were thinking about sheri cause some people don't read just the bumped up topics- some read by category only, go backwards, etc.

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post #10 of 82 (permalink) Old 07-23-2009, 05:49 PM
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Amanda, I'd PM her if I could remember who it was...I'll do a search and see if I can track her down, but it's been several months since the post I'm thinking about...

Aha, well that was fast!! Here's the one I'm thinking of, Janet may already know of her.

http://havaneseforum.com/showthread....=thinning+hair

I'll send her a pm.

Sheri, Tucker's Mom

Last edited by Sheri; 07-23-2009 at 05:51 PM.
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