I wish there was... but the only SA group I've seen is a Yahoo group that's been in active for a long time :-(
Ricky was diagnosed with SA Jan. 2010 and we're also having a really hard time trying to control this nasty disease!!
We don't get Ricky vaccinated and in the beginning we had him on Cyclosporine that stopped working. It's very frustrating because it seems it can get bad or clear up no matter what we do or don't do...
What are you doing to control Phils SA? Is he on any medication?