Parkinson's

[davetgabby]

Originally Posted by HavaneseSoon

Did you get my pm Dave?

yep

[Suzi]

Originally Posted by davetgabby

This was not a good week. On Wednesday I was to see a neurologist about some issues I was having ,especially with my left arm. Turns out he's pretty sure I have the early signs of Parkinson's. My wife has given me a couple of articles to read . I haven't quite found the courage to read them yet lol. But I was wondering if I could find a buddy on the forum that has this disease so I could share and learn. Please email me privately if you're up to it. Thanks Dave .

Ah Dave that's not a fun thing to hear. I'm hoping you found a buddy on the forum to talk with to share and learn. I have a friend who's doctor miss diagnosed her with a bad cancer. She was given a year to live with no treatment. Well it turned out she didn't progress like he thought and she never did have what he said. I guess I'm just praying he may be wrong. What kind of test is it? If you don't mind sharing?

[atsilvers27]

So sorry to hear this Dave. I don't person ally know anyone with the disease, but my MIL has RA. Hers is quite advanced now, but it seems to me that holding onto anger and bitterness really do age the body, just an observation. Thinking positively helps us to manage the cards we've been dealt. I'm certain you already eat healthy, but if not I'm sure that helps. This has to do with MS and lupus, but those are both autoimmune diseases and so is Parkinson's, but it was a big thing that just came out that artificial sweeteners such as those found in diet sodas cause symptoms very similar to MS. In fact, scientists now think that many people who drink diet sodas and are diagnosed as MS or lupus actually have formaldehyde poisoning (or whatever the sweetener is called I know after it heats up to 86 degrees it turns into formaldehyde). After they stop.drinking it often the symptoms vanish. So healthy, wholesome diet, rest, exercise and avoid high stress. You can also get a second opinion as well. I don't believe our lives are written out in stone already. We have the ability to make the best of what we've got.

[davetgabby]

Originally Posted by Suzi

Ah Dave that's not a fun thing to hear. I'm hoping you found a buddy on the forum to talk with to share and learn. I have a friend who's doctor miss diagnosed her with a bad cancer. She was given a year to live with no treatment. Well it turned out she didn't progress like he thought and she never did have what he said. I guess I'm just praying he may be wrong. What kind of test is it? If you don't mind sharing?

Thanks Suzi, actually there is no definitive test. It's more or less a determination from the symptoms. Mind you they do rule out things with a bunch of electrical shocks and dexterity tests. Funny thing is I can do push ups ,lift a heavy box , but have a hard time tightening the lid on a jar with my left arm. He noticed a bit of a slow left leg when I walk and sometimes my speech is softer. I guess it's the combination of tests ,but there is no blood test or MRI test that shows something definitive. I have a lot to learn , as this is pretty sketchy right now.

[davetgabby]

Originally Posted by atsilvers27

So sorry to hear this Dave. I don't person ally know anyone with the disease, but my MIL has RA. Hers is quite advanced now, but it seems to me that holding onto anger and bitterness really do age the body, just an observation. Thinking positively helps us to manage the cards we've been dealt. I'm certain you already eat healthy, but if not I'm sure that helps. This has to do with MS and lupus, but those are both autoimmune diseases and so is Parkinson's, but it was a big thing that just came out that artificial sweeteners such as those found in diet sodas cause symptoms very similar to MS. In fact, scientists now think that many people who drink diet sodas and are diagnosed as MS or lupus actually have formaldehyde poisoning (or whatever the sweetener is called I know after it heats up to 86 degrees it turns into formaldehyde). After they stop.drinking it often the symptoms vanish. So healthy, wholesome diet, rest, exercise and avoid high stress. You can also get a second opinion as well. I don't believe our lives are written out in stone already. We have the ability to make the best of what we've got.

Thanks, yeah who knows what these chemicals can do, but you're so right, there's a lot we can do to help cope. And I need to do more and worry less, for sure. If only my wife was healthy, I wouldn't worry about this so much. I will be also seeing a specialist in Parkinsons but the guy I saw already is a leading neurologist in Ontario. Thanks for your support.

[Suzi]

Originally Posted by davetgabby

Thanks Suzi, actually there is no definitive test. It's more or less a determination from the symptoms. Mind you they do rule out things with a bunch of electrical shocks and dexterity tests. Funny thing is I can do push ups ,lift a heavy box , but have a hard time tightening the lid on a jar with my left arm. He noticed a bit of a slow left leg when I walk and sometimes my speech is softer. I guess it's the combination of tests ,but there is no blood test or MRI test that shows something definitive. I have a lot to learn , as this is pretty sketchy right now.

Okay well it sounds like you are in good hands. We all care about you and life sometimes does throw us some bad curve balls. From reading others posts it sounds like medication has come a long way with this disease.

[Luciledodd]

Dave I had to think a while before commenting. I have had such a hard time since the heart surgery and now I have a gall bladder issue and My last sister died last month, so I am blue and not someone that can cheer you up. However, we had a yound employee that had PD and he finally had to quit. But Larry had an soldier in the State Guard with him that is Larry's age and he is still coming to drill and doing fine with medication. I know that we don't agree on "pecking order" and dominance, etc; but we both have a sense of humor that I love and I don't pay much attention to that I don't agree with. No matter what you think about me getting another dog, I am going to Louisville this coming weekend to get a purebred English Shepherd. I found that the setter was not a very smart breed and besides I didn't know what traumas it had been through. I just want you to know that I think of you as a valued friend and pray that you will get the meds you need.

[Lily528]

Dave, I am really sorry to hear about your diagnosis. Having a chronic disease myself, I can only say that it is so important to find a great doctor, one who is up on all the latest research, and will also take the time to answer all your questions. I sometimes go into my appts. with a written list of questions and take notes. Wishing you all the best!

[sashamom]

Originally Posted by davetgabby

This was not a good week. On Wednesday I was to see a neurologist about some issues I was having ,especially with my left arm. Turns out he's pretty sure I have the early signs of Parkinson's. My wife has given me a couple of articles to read . I haven't quite found the courage to read them yet lol. But I was wondering if I could find a buddy on the forum that has this disease so I could share and learn. Please email me privately if you're up to it. Thanks Dave .

Dave I do not post much but just had to respond to your post. I have two friends with Parkinsons and a former father in law (he passed at 98). I can tell you that from what I have seen it may slow you down some but not as much as you may think. Good thoughts and prayers coming your way. I do know that one of the doctors recommended my friend get a ninetindo or Xbox and do the fun games that keep you moving. Exercise really helps as will doggie kisses. Spousal kisses help alot also! Hugs to you. Linda

[Pipersmom]

I'm sorry you got this news Dave. You are a positive person and I know that will help you with the challenges that lie ahead.

Wishing the best for you.
Julie