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post #1 of 46 (permalink) Old 05-12-2011, 05:50 PM Thread Starter
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Lyme Disease? (in humans)

Hi All: in a recent physical I tested positive for lyme. I can't say I am surprised as I have symptoms since before 1999 when I actually did test positive, but on later analysis it was said to not be a positive. Yet still, it is the first thing doctors test me for but since I never tested positive since then, I never received long enough treatment. And was told I have fibromyalgia. Although every time I got something that required antibiotics-- I got really sick and then felt surprisingly better for months. (the feeling worse is apparently the bacteria dying off.) Apparently, the bacteria, can hide and stay out of site (or out of the blood) so there are a lot of undiagnosed cases out there (so some people say(

Well, I am now on a 3 month course to start of Ceftin. I have been on it for 10 days and OMG do I feel horrible. I can barely move things hurt so much... and I have one of my really annoying rashes (they call it a herxheimer reaction) But I have this fantasy though that I am going to get through this really long treatment and feel better than I have in literally years.

There is so much information out there, and misinformation...and no doctor can know everything (although I love my PC) so I like to do some research, so I thought I would tap into all you know. Any info or sites you can share I would appreciate it.




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post #2 of 46 (permalink) Old 05-12-2011, 06:09 PM
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(((Missy)))
I know someone who tested positive for lyme disease. I'll check with them and get back to you.

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post #3 of 46 (permalink) Old 05-12-2011, 06:15 PM
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sorry to hear all this Missy. My wife has fibromyalgia. How long have you had it.?

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post #4 of 46 (permalink) Old 05-12-2011, 06:41 PM
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Missy,
I am sorry to hear that. I too have Lyme. I know a lot about it.....I just got over a round of antibiotics and I believe I caught it in time this time around.

You feel horrible because you are having a die off of the spirochette. That is a good thing. The problem is, if you have been living with Lyme for years, 3 months may not be enough. It will kill the weaker bugs but the others that don't die will become resistant. You might want to seek out a Lyme Literate Doctor. That's what I did the second time I got Lyme. It is not covered by insurance and it cost me thousands of dollars. It was combo meds for about a year!

Along with taking this medicine, you need to get healthy. Your Fibro is probably not really fibro, but Lyme. Lyme mimics all kinds of other diseases and people go misdiagnosed for a long time. Get at least 8 hrs of sleep a night, eat healthy, take herbal supplements ( Samento ) , exercise and juice. You need to hit the Lyme from every direction.

There is so much controversy over Lyme. The tests are only about 40% accurate giving false negatives most of the time. Insurance companies won't admit there is a problem with the testing and treatment because it would cost billions of dollars........Infectious disease Docs are the worst!!!

You can also go on curezone for more information on cures. Good luck Missy!






Last edited by lfung5; 05-12-2011 at 07:04 PM.
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post #5 of 46 (permalink) Old 05-12-2011, 06:51 PM
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Linda are you sure you can catch fibro from Lyme.? Gwen seems to disagree. There might be similar symptoms , but she has never heard of this.?

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post #6 of 46 (permalink) Old 05-12-2011, 07:02 PM
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Hi Dave,
You don't catch Fibro from Lyme. Sometimes the docs will diagnose a patient with fibro when it is actually Lyme. If you are diagnosed with fibro and you take medication for lyme and you feel better, you probably have Lyme not fibro. Does this make sense? If you truly had fibro, I don't think the lyme medicine would help.





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post #7 of 46 (permalink) Old 05-12-2011, 07:06 PM
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Missy:

http://www.underourskin.com/

It is a documentary on Lyme. It follows several peoples stories that were misdiagnosed. It is worth buying. Watch the trailer.





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post #8 of 46 (permalink) Old 05-12-2011, 07:08 PM
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Quote:
Originally Posted by lfung5 View Post
Hi Dave,
You don't catch Fibro from Lyme. Sometimes the docs will diagnose a patient with fibro when it is actually Lyme. If you are diagnosed with fibro and you take medication for lyme and you feel better, you probably have Lyme not fibro. Does this make sense? If you truly had fibro, I don't think the lyme medicine would help.
That's true with RA too (which I really do have). But there are lots of people dx'd with RA who actually turn out to have Lyme.


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post #9 of 46 (permalink) Old 05-12-2011, 07:10 PM
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Maybe that's what I was thinking about RA not fibro..... people have been told they have MS, RA, Parkinsons, etc and that they were just plain crazy!





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post #10 of 46 (permalink) Old 05-12-2011, 07:13 PM
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Quote:
Originally Posted by lfung5 View Post
Hi Dave,
You don't catch Fibro from Lyme. Sometimes the docs will diagnose a patient with fibro when it is actually Lyme. If you are diagnosed with fibro and you take medication for lyme and you feel better, you probably have Lyme not fibro. Does this make sense? If you truly had fibro, I don't think the lyme medicine would help.
yeah Linda Gwen agrees with this.

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