This is a older post with our forum I hope it was okay for me to copy I'm sorry your baby has SA I'm not sure if the study is still going on. But maybe you can get more answers by contacting one of the e mail addresses on this page.
As you may know, funding for the research project to identify the mode of inheritance and gene or genes associated with Sebaceous Adenitis in the Havanese breed has been approved! We have started to enroll dogs into the study and we need your help. We are looking for dogs of any age with suspected or diagnosed sebaceous adenitis and dogs that are 7 yrs of age or older without sebaceous adenitis.
If you volunteer your dog, you will need to make a vet visit, have 5 ml of blood drawn and have a skin punch biopsy taken. The funding for the study will cover the costs of the vet visit, blood sample and biopsy. In addition, the participating clients will receive $12 for the blood sample and $40 for the skin punch biopsy for each dog enrolled in the study as compensation for your dog's participation.
To apply for enrollment, please complete the attached information sheet and return it to me. I will build a pedigree for your volunteered dog, do pedigree research as it relates to SA to see how closely related your dog is to known SA affected dogs (we need dogs that are closely related and some that are not closely related to SA affected dogs) and I will submit the documentation to Dr Koch and her research team at the U of MN. They will evaluate the information, select the dogs that they want to include in the project and will contact the owners for participation and next steps. Although I will know the dogs that are volunteered for the project, I will not know the dogs that were actually selected to participate. From this point on, it will be totally confidential. Only the project leads at the U of MN will know the identity of the dogs participating in the project.
If you have a dog or dogs that fit the criteria for the study and you are willing to allow them to participate, please complete the attached information form and return it to me. If your dog is symptomatic for SA, PLEASE INDICATE THIS IN THE NOTES SECTION OF THE FORM. We are in desperate need of additional SA affected dogs.(regardless of age) If you have or know of a dog that is or may be SA affected, I encourage you to volunteer this dog for the study. If you have any questions, please feel free to contact me. You are welcome to call me a 763-213-1498 if you prefer a conversation vs email. Thank you all for your support of this effort and for your willingness to participate. I hope I have the opportunity to work with you.
. . . . .permission to cross-post
This study is so important to the future of our breed! PLEASE consider participating if you have a dog that meets the criteria.
Any questions, just let me know or contact MaryEllen at [email protected]
You can find more information on SA (sorry it's not been updated yet) at: http://janizonahavanese.com/SA.html
I will be putting the link for the submission form on the website as I'm unable to attach it here. You can also write me direct for it until I get it on my site.